Archives For Epilepsy

Hi guys! I have to admit, I am hopelessly behind in everything this week. I have tons to share–so, hopefully I’ll be posting a bunch soon. Coming up:

Please show your support of this awareness campaign for Epilepsy by copying and pasting the following into your Facebook:

The World is turning PURPLE today!!! •:*¨☆¨*:•Today is PURPLE DAY •:*¨☆¨*:• Wear Purple today to help create awareness for epilepsy, around the world. Learn more about how it affects those who have to live with epilepsy daily. http://www.purpleday.org/

Next…

An Easter Celebration! I think this is really my favorite holiday and I cannot wait to get some stuff posted about this. I have some great companies sponsoring giveaways for us. I’ll let you in on a few–there are more:)

How about a fantastic Easter bouquet from Teleflora? Or a gorgeous necklace from Alexa’s Angels? I will do some quick turnaround giveaways, so keep your eye on Faith, Family and Fun!

Also, you can check in on Faith, Family and fun on Facebook, here. I am often too lazy to do a big post about all the deals and goodies my friends share…but I will do so on Facebook:))

Have a fantastic friday and God Bless!

My Oldest & Youngest

My Oldest & Youngest

Well, as we head into the weekend, it makes me happy to post a photo of my college guy and the baby going for a walk with me in the snow.

We have had quite a Winter so far, and I am looking forward to walks in the Spring! Lately, with everything going on around here, I have lost all my desire to rearrange things and do bulk cooking and some of my other large projects.

Still, I have almost a nesting desire going on–I want the house clean and organized. I want to stock up on foods and have school supplies more under control…all this, really, so I can spend more time just playing with Emma–especially right now, I want to rest, not find deals at Target. (Sorry, my old buddy Target)

I realize epilepsy isn’t the end of the world, but it has changed MY world! This is the ultimate “not controllable” (by me) thing I can think of!

But, I do want peace and comfort in our home. So…

I am speaking more quietly and going slower. Thinking of ways to make life easier for all of us.

I am in the middle of rearranging our schoolroom to be more useable and less frustrating for me. I have talked my husband into helping me come up with some new storage solutions and I am wanting to give each child their own study area. I have been looking into some new kids furniture…perhaps a little desk or something for only “official” school time for Emma.

Here’s hoping we can make some progress over the weekend.

Have a great weekend!

Rainbow Brite 3 (2)

Hi to everyone:) Yesterday, we had our big visit with our pediatric neurologist. We have a plan for how to handle Em’s epilepsy with medication for the moment..a MRI will also get done soon.. Please say a prayer that this medication works!

I have a new respect for moms with kids with special needs–what a different, intense lifestyle. Anyway, I still need to process all this for myself, but I wanted to say thank you to everyone who has sent their prayers and well wishes. I needed that!

We slept in until 9 am this morning!!

I also have a few giveaways I need to draw winners for–I will post those tomorrow. Thanks for hanging on.

Some upcoming giveaways? Well, yes:) I have a Rainbow Brite Doll giveaway I should post tomorrow. I was kind of sad to see Rainbow Brite is not her impish, chubby self, but as evidenced by the photo above, my girl thinks the new Rainbow Brite is just great.

I have a few others as well.  A couple of reviews…

And,some school today–just a two hour delay, which I almost slept through:) So homeschool, public school, cleaning and cooking, dealing with all the new medical stuff with Em…all this may go on today

Typing it up really helps me. But, really…that sounds awful–Nevermind.

This afternoon, I will school a little and get some MARDI GRAS going on around here tonight!!

monopoly_logoIf you are looking for some good, easy recipes and other ideas on ways to celebrate Mardi Gras around your house, go to the Zatarains Mardi Gras website.

I am doing a House Party for Mardi Gras with Zatarains. I received an awesome party pack–inside were masks, Zatarains mixes, beads, doubloons, cajun music ideas…even Zatarains rootbeer extract. You may remember we had a trial run Mardi Gras last Tuesday while we were snowed in:) That was fun and I have learned how to make a pretty killer Jambalaya! Any excuse for a party is nice with a house full of teens–tonight I’ll do Virgin Hurricanes in cool glasses, I hope.

PS: On their site, you can print out masks, get recipes for Carnival Jambalaya, and learn how to make Homemade rootbeer floats. (we did those–very easy.)

For a lot of these foods, they have mixes, so you can grab stuff at the grocery store and surprise your family tonight!

I also got a bunch of .50 coupons off  Zatarains mixes (they don’t say you cannot double, so you could get some deals w/these) so if anyone wants a few, just shoot me a comment.



Thursday was much more fun than Friday!!

Thursday was much more fun than Friday!!

I have not had such a topsy-turvy 2 months in a long time. Last time i posted, I was kvetching about being snowed in.

So, I was thrilled to get out behind the plows to Target. But, Emma had a seizure in Target and I almost lost it.

I wanted to share that It is quite possible I had an angel in Target with me when Emma had her seizure–since these seizures are relatively new, I have not had to deal with her having a seizure in public. I thought I was ready, but it took me by surprise.

Anyway, After I realized she was seizing, (which took me a minute) I carried her to one of the couches in Target and laid her down. I had an employee call 911–as I couldn’t seem to use my phone.

Then, I was trying rubbing her, trying to decide what to do next. My cell phone had low battery and I was shaking so badly, I couldn’t dial my husband.

I had a prescription in my purse for her, but it is a kind I have to do at a certain point and it is like a suppository shot, which I was not inclined to do in front of everyone — and I wasn’t sure how to do it, anyway. (I know, I shouldn’t care). I definitely need to learn to focus under pressure.

Anyway, right at that point where I was freaking out, a woman walked up and said she was a nurse. I told her we were working with a neurologist at UVA and this was kind of expected, but I was uncertain about giving the medicine. She was soooo calm and kind–she said she worked with UVA:).

She checked Emma over and then told me I needed to go to the ER, but not to do the medicine, that the seizure was now over–right when she said that, she was rubbing Emma and Em turned over on her stomach and went to sleep (actually it is called postectal, they are really tired after a seizure)

So,  the ambulance came & we went on with the whole process–at some point the woman disappeared…but thank God she was there–she really helped us both through a rough experience.

And, now you know my dirty secret about why I try to always be over-prepared for stuff–when emergencies happen, I freeze so badly!! Guess I’m getting better at emergencies, bit by bit.

Anyway, thank you to everyone who is praying over us and giving me tips about epilepsy. When we got home from the ER last night, my college son had found a bunch of information about alternative therapies (including Ginseng–) and my mom has researched keppra and depacote. My in-laws called to tell me don’t do depacote! And, my brother and sister in law have been through this with their little girl. (with a good outcome:)

So, we continue learning about this and growing as a family. I do really wish I could just soothe her head, like I rub her back!